Helpful websites and resources for families and caregivers

Volume 3, Issue 3
Summer 2002
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Helpful websites and resources for families and caregivers
Kristi Denkeler, Jennifer Escamilla, and Colin Nauert
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Links to non-Premier Outlook or publisher organizations found in this publication are provided solely as a service to our readers. These links do not constitute an endorsement of these organizations or their programs by Premier Outlook and its publisher and none should be inferred. Premier Outlook and its publisher are not responsible for the contents of the individual organizations’ web pages found at these links.

References from - Communication vs. Conflicts: Helping Parents and Educators

• Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
http://www.directionservice.org/cadre This site is especially helpful for parents to understand when and how to request mediation when agreement can not be reached with the educational team. A listing of professionals by state helps families locate resources.

• Family and Advocates Partnership for Education
http://www.fape.org/ Lots of information about the Individuals with Disabilities Education Act is provided with material written just for families. Has extensive information to help
families understand how the special education process works and how to be effective advocates.

• Family Village: A Global Community of Disability-Related Resources
http://www.familyvillage.wisc.edu This site is a general resource for families of persons with disabilities and includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and lots more.

• National Information Center on Children and Youth with Disabilities
http://www.nichcy.org/ This national information and referral center provides information on disabilities and disability-related issues for families, educators, and other professionals with a special focus on children and youth (birth to age 22). Includes an excellent Fact Sheet on Traumatic Brain Injury. Includes lots of publications written for families in understandable terms about important laws and regulation on special education.

• ParentPals.com Parents and Special Education
http://www.parentpals.com Designed to help parents find resources and information, this site has everything from sections on special education to continuing education, family support, weekly tips, games, book resources, and news and views for parents and professionals.

• Technical Assistance Alliance for Parent Centers
http://www.taalliance.org/ Has information on Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in each state providing training and information to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children.

References from - Brain Injury and the Teenager

Center for Disease Control & Prevention. Youth risk behavior surveillance: national college health risk behavior survey –
United States, 1995. Morbidity and Mortality Weekly Report. 46(SS-6), November 1997.

Ewing-Cobbs L, Fletcher J & Levin H: Neuropsychological sequelae following pediatric head injury. In: Head Injury Rehabilitation:
Children and Adolescents. M Ylvisaker (Ed). San Diego: College Hill Press, 1985. Pgs. 71-91.

Handgun Control. Firearm Facts. Washington, DC, 1999.

Mattson J: Case management and life care planning in brain injury rehabilitation. In: Rehabilitation of the Adult and Child with Traumatic Brain Injury. M Rosenthal et al., (Eds). Philadelphia: FA Davis Company, 1999. Pgs. 586-599.

National Center for Alcohol and Drug Information. Here are the Straight Facts about Marijuana.
The Substance Abuse and Mental Health Services Administration. U.S. Department of Health & Human Services, 1999a.

National Center for Alcohol and Drug Information. Here are the Straight Facts about Cocaine and Crack.
The Substance Abuse and Mental Health Services Administration. U.S. Department of Health & Human Services, 1999b.

National Center for Alcohol and Drug Information. Traumatic brain injury and alcohol, tobacco and other drugs.
The Substance Abuse and Mental Health Services Administration. U.S. Department of Health & Human Services, 1999c.

National Center for Alcohol and Drug Information. Traumatic brain injury and alcohol, tobacco and other drugs and the college experience.
The Substance Abuse and Mental Health Services Administration. U.S. Department of Health & Human Services, 1999d.

National Highway Traffic Safety Administration. Drunk and Drugged Driving (3D) Prevention Month: Resource Guide. December, 1998.

National Highway Traffic Safety Administration. 1996 Youth Fatal Crash and Alcohol Facts. 1999a.

National Highway Traffic Safety Administration. Introduction: The need for graduated driver licensing. In: Saving Teenage Lives. 1999b.

National Safe Kids Campaign. Fact Sheet on Bicycle Injury. Washington, DC, 1999.

Research and Training Center in Rehabilitation and Childhood Trauma. National Pediatric Trauma Registry. Fact Sheet #3. October, 1993.

Sacks JJ, Holmgreen MS, Smith SM et al.: Bicycle-associated head injuries and deaths in the United States from 1984-1988:
How many are preventable? Journal of the American Medical Association. 266:3016-3018, 1991.

Sosin et al.: Trends in deaths associated with traumatic brain injury, 1979 through 1992. Journal of American Medical Association. 273(22).

Think First Foundation. Fact Sheet in Firearms. Park Ridge, IL, 1999.

Zemper: Analysis of cerebral concussion frequency with the most commonly used models of football helmets. Journal of Athletic Training. 29(1):44-50, 1994.

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